NOM

Great news Kish!

Give your family hugs from a random, fluffy, internet stranger.

That's wonderful Kish. Best of luck to all of you. I believe in miracles but they don't require magic. Just love.

Happy to hear she's home with you now. Love her and be loved by her!

We are so glad to hear this. The Flying Spaghetti Monster has smiled upon her.

I'm glad she's home, Kishkumen. Your family has gone through such a scary time! I hope she improves more and more and more. <3

Wonderful news!!! Saw her FB page, she’s come so far. She is beautiful.

This is great news!

Considering the last update, it sounds like things have been taking on a much better path, and that is reason for celebration and hope.

So glad you're home - that is just fantastic news!

That is great news! I'm so glad to hear she is able to come home!

Fantastic progress for such a dire situation. Happy for your family.

Thank you for the update. We are pulling for your daughter and your family.

Kish, that's so good to hear. I hope you're all finding some measure of peace.

That's good news. Take care of your family and yourself.

Can't imagine what you and yours have been through the past few months. So glad things are looking better. Makes us grateful for even the smallest gifts.

Thus is great news. So glad to hear she’s doing so well she could come home. May she continue to improve beyond your expectations.

Kishkumen, best wishes to all your family.

Glad to hear your daughter's home. Best wishes on her battle with this horrible disease.

I have a child with multiple physical disabilities and I have great sympathy for you and the trials you have just endured. I imagine you were torn in so many directions with a job and bills, (and other children I assume?) not to mention this all happened over the holidays. Even everyday normal life's challenges feel insurmountable. The level of exhaustion must have been indescribable. I hope that with her home, you and your family are able to find some rest.

I am sure you have already received a lot of unsolicited advice- so adding my own: closed Facebook groups on specific diagnoses and in-state organizations are as valuable as gold. Finding parents who have been through it or are going through it can help you with emotional support and help you with finding resources you may not know about. It may feel like you have too much on your plate, but I encourage you to look for local organizations that support special needs/medically fragile children as soon as you can because resources can sometimes be scarce. They can also help when it comes time to navigate an IEP. IEPS for medically fragile children are a beast with too many tentacles with PT/OT/ST, etc- it never ends.

Hopefully you had a good case worker at the hospital and you already have info...I could keep going- but I offer you hugs and support from afar. It will get easier.

Great update! Glad she is home with family and hopeful for more recovery & improvements!

I'm so happy for you guys! She is so amazing! So many hugs for you guys!!!

I haven't been active on this site for a few months, and stumbled on your posts, Kish. Thanks so much for creating the Facebook site. It makes it all much more personal. As I see the photo of you holding your precious Ruby, it makes my heart weep with sympathy. I'm a dad myself of a beautiful, sassy (non-rehead) daughter, who is recently come into adulthood. I so much wish the best for you and your family at this time. I hope Ruby can regain her cognitive and neurological function, and that your your love (which as anyone can see is as boundless as they come) will win over the frailties of the physical body.

All my best, friend!