93 days and she's home
Re: 93 days and she's home
Great news Kish!
Give your family hugs from a random, fluffy, internet stranger.
Give your family hugs from a random, fluffy, internet stranger.
Faith does not give you the answers, it just stops you asking the questions. -Frater Ravus
IDKSAF -RubinHighlander
Gave up who I am for who you wanted me to be...
IDKSAF -RubinHighlander
Gave up who I am for who you wanted me to be...
Re: 93 days and she's home
That's wonderful Kish. Best of luck to all of you. I believe in miracles but they don't require magic. Just love.
“The easy confidence with which I know another man's religion is folly teaches me to suspect that my own is also.” -Mark Twain
Jesus: "The Kingdom of God is within you." The Buddha: "Be your own light."
Jesus: "The Kingdom of God is within you." The Buddha: "Be your own light."
Re: 93 days and she's home
Happy to hear she's home with you now. Love her and be loved by her!
Well, I'm better than dirt! Ah, well... most kinds of dirt; not that fancy store-bought dirt; that stuff is loaded with nutrients. I can't compete with that stuff. -Moe Sizlack
Re: 93 days and she's home
We are so glad to hear this. The Flying Spaghetti Monster has smiled upon her.
Re: 93 days and she's home
I'm glad she's home, Kishkumen. Your family has gone through such a scary time! I hope she improves more and more and more. <3
There are 2 Gods. One who created us. The other you created. The God you made up is just like you-thrives on flattery-makes you live in fear.
Believe in the God who created us. And the God you created should be abolished.
PK
Believe in the God who created us. And the God you created should be abolished.
PK
- StarbucksMom
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Re: 93 days and she's home
Wonderful news!!! Saw her FB page, she’s come so far. She is beautiful.
Re: 93 days and she's home
This is great news!
Considering the last update, it sounds like things have been taking on a much better path, and that is reason for celebration and hope.
So glad you're home - that is just fantastic news!
Considering the last update, it sounds like things have been taking on a much better path, and that is reason for celebration and hope.
So glad you're home - that is just fantastic news!
Re: 93 days and she's home
That is great news! I'm so glad to hear she is able to come home!
"I would write about life. Every person would be exactly as important as any other. All facts would also be given equal weightiness. Nothing would be left out. Let others bring order to chaos. I would bring chaos to order" - Kurt Vonnegut
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Re: 93 days and she's home
Fantastic progress for such a dire situation. Happy for your family.
Re: 93 days and she's home
Thank you for the update. We are pulling for your daughter and your family.
~2bizE
Re: 93 days and she's home
Kish, that's so good to hear. I hope you're all finding some measure of peace.
Learn to doubt the stories you tell about yourselves and your adversaries.
Re: 93 days and she's home
That's good news. Take care of your family and yourself.
Re: 93 days and she's home
Can't imagine what you and yours have been through the past few months. So glad things are looking better. Makes us grateful for even the smallest gifts.
"There is but one straight course, and that is to seek truth and pursue it steadily."
"Truth will ultimately prevail where there is pains to bring it to light."
George Washington
"Truth will ultimately prevail where there is pains to bring it to light."
George Washington
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Re: 93 days and she's home
Thus is great news. So glad to hear she’s doing so well she could come home. May she continue to improve beyond your expectations.
Re: 93 days and she's home
Kishkumen, best wishes to all your family.
Good faith does not require evidence, but it also does not turn a blind eye to that evidence. Otherwise, it becomes misplaced faith.
-- Moksha
-- Moksha
- Mormorrisey
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Re: 93 days and she's home
Glad to hear your daughter's home. Best wishes on her battle with this horrible disease.
"And I don't need you...or, your homespun philosophies."
"And when you try to break my spirit, it won't work, because there's nothing left to break."
"And when you try to break my spirit, it won't work, because there's nothing left to break."
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Re: 93 days and she's home
I have a child with multiple physical disabilities and I have great sympathy for you and the trials you have just endured. I imagine you were torn in so many directions with a job and bills, (and other children I assume?) not to mention this all happened over the holidays. Even everyday normal life's challenges feel insurmountable. The level of exhaustion must have been indescribable. I hope that with her home, you and your family are able to find some rest.
I am sure you have already received a lot of unsolicited advice- so adding my own: closed Facebook groups on specific diagnoses and in-state organizations are as valuable as gold. Finding parents who have been through it or are going through it can help you with emotional support and help you with finding resources you may not know about. It may feel like you have too much on your plate, but I encourage you to look for local organizations that support special needs/medically fragile children as soon as you can because resources can sometimes be scarce. They can also help when it comes time to navigate an IEP. IEPS for medically fragile children are a beast with too many tentacles with PT/OT/ST, etc- it never ends.
Hopefully you had a good case worker at the hospital and you already have info...I could keep going- but I offer you hugs and support from afar. It will get easier.
I am sure you have already received a lot of unsolicited advice- so adding my own: closed Facebook groups on specific diagnoses and in-state organizations are as valuable as gold. Finding parents who have been through it or are going through it can help you with emotional support and help you with finding resources you may not know about. It may feel like you have too much on your plate, but I encourage you to look for local organizations that support special needs/medically fragile children as soon as you can because resources can sometimes be scarce. They can also help when it comes time to navigate an IEP. IEPS for medically fragile children are a beast with too many tentacles with PT/OT/ST, etc- it never ends.
Hopefully you had a good case worker at the hospital and you already have info...I could keep going- but I offer you hugs and support from afar. It will get easier.
Re: 93 days and she's home
Great update! Glad she is home with family and hopeful for more recovery & improvements!
Re: 93 days and she's home
I'm so happy for you guys! She is so amazing! So many hugs for you guys!!!
...walked eye-deep in hell
believing in old men’s lies...--Ezra Pound
believing in old men’s lies...--Ezra Pound
Re: 93 days and she's home
I haven't been active on this site for a few months, and stumbled on your posts, Kish. Thanks so much for creating the Facebook site. It makes it all much more personal. As I see the photo of you holding your precious Ruby, it makes my heart weep with sympathy. I'm a dad myself of a beautiful, sassy (non-rehead) daughter, who is recently come into adulthood. I so much wish the best for you and your family at this time. I hope Ruby can regain her cognitive and neurological function, and that your your love (which as anyone can see is as boundless as they come) will win over the frailties of the physical body.
All my best, friend!
All my best, friend!